Motor neurone disease helplines
MND (Motor Neurone Disease)
Comprehensive help and information from the NHS including symptoms, diagnosis and treatment, including links to external sites.
MNDA
MND Connect: 0808 802 6262
The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by MND. The helpline provides advice, practical and emotional support and directing to other services and agencies, for people living with MND, carers, family members, Health and Social Care Professionals and Association staff and volunteers.
MND Scotland
Helpline: 0141 332 3903
We have been at the front line against MND in Scotland. We fund ground-breaking MND research and world-class clinical trials. We campaign to fix a broken system and to secure lasting change. Much of our day-to-day work is in making time count for people with MND and the loved ones supporting them. Whether that’s helping families make memories through accessible holidays, grants to improve quality of life, or an Advocate to fight their corner and secure essential home adaptations faster, we are here to help. When time matters most, we’re a helping hand of support, so people with MND can make precious time count with the ones they love.
The Brain & Spine Foundation
Helpline: 0808 808 1000
The Brain and Spine Helpline is staffed by neuroscience nurses and other health professionals. It covers all neurological conditions, from the fairly common to the very rare, and can offer information and support on any medical or related social and emotional issues of concern. The service answers queries by telephone, letter or email as well as providing an opportunity for people to share their experiences of having a neurological condition on the discussion forum.
Carers
Gov UK – Caring for someoneCarers resourcesGives details of services and benefits for UK carers.
Citizens Advice Scotland – Carers Help & Support
Carers UKHelpline: 0808 808 7777www.carersuk.org
Carers UK provides information and advice to people who provide unpaid support to their relatives, partners or friends who are chronically ill, disabled or frail.
Carers Trust
Head Office: Tel: 0300 772 9600www.carers.org
We work to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems. We do this with a UK wide network of quality assured independent partners and through the provision of grants to help carers get the extra help they need to live their own lives.
With locally based Network Partners we are able to support carers in their homes through the provision of replacement care, and in the community with information, advice, emotional support, hands on practical help and access to much needed breaks. We offer specialist services for carers of people of all ages and conditions and a range of individually tailored support and group activities.