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Kira smiles for Rylan as she shares remarkable story

Kira Yates, nine, is about as remarkable a child as you could imagine. She was born with an extremely rare chromosomal disorder called Apert Syndrome which resulted in her being born with completely unexpected malformations to her skull, face, hands and feet.

The condition has been dubbed broken doll syndrome, as for years Kira has had endless painful operations to rebuild parts of her body so that it's able to facilitate her growth like that of a healthy child.

She joins us now alongside her mother Michelle and Joan Grogan, the craniofacial nurse from Alderhey Children's Hospital in Liverpool who has supported Kira and her family through the initial trauma and life with such a rare and debilitating condition.

Apert Syndrome helplines

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