Family of kidney death patients push for recommended changes

Families of two transplant patients who died after being given kidneys infected with rare parasitic worms have urged the health board to make changes. Robert Stuart and Darren Hughes both died from a parasite known as halicephalobus, which lives in soil and is often found in horses. An inquest ruled that the decision to use the kidneys was correct.

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Kidney transplant tragedy 'will live with' surgeon

Surgeon Argiris Asderakis was responsible for accepting the kidneys. Credit: ITV Cymru Wales

Argiris Asderakis, the consultant transplant surgeon who was responsible for the kidney operations, has apologised for what happened.

I am very sorry that two people have lost their lives and the pain and sadness that the families continue to cope with.

I take pride in my many years working in transplantation and the people and families whose lives have been helped by the Cardiff Transplant Unit.

Their words have been a great support and I am very grateful to them. Kidney transplantation is performed to prolong the lives of patients who suffer from renal failure. Although nobody could have anticipated this tragedy it will live with me and I am deeply sorry for what happened.

– Argiris Asderakis, Consultant Surgeon at Cardiff Transplant Unit

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Robert Stuart's family 'left completely devastated'

Robert Stuart, 67, from Cardiff died after receiving a kidney transplant at the University Hospital of South Wales. Credit: Family/Irwin Mitchell

The widow of Robert Stuart, who died after receiving a kidney transplant infected with parasitic worms, has spoken of his family's grief and urged patients waiting for organs to ask for more information.

Our family has been left completely devastated by Jim’s death and we are still struggling to come to terms with what has happened especially as we were hoping that the kidney transplant was going to give him a new lease of life.

We want to highlight that every patient who is waiting for organs on the transplant list that they have the right to turn down an organ if they are concerned about the risks. We also feel it is important to say that every patient and family have the right to question the surgeon’s opinion and ask for more information – we feel that we weren’t given the opportunity to make an informed decision as we were not given any information. If we had been given a chance to consider the options about the surgery the outcome would have been entirely different.

– Judith Stuart, Robert's widow

Darren Hughes' family: 'No words can describe our loss'

The father of transplant patient Darren Hughes, who died after being given kidneys infected with parasitic worms, says "no words can describe" the family's loss.

Darren Hughes, 42, from Bridgend, was one of two transplant patients who died after being given kidneys infected with parasitic worms. Credit: Family / Irwin Mitchell

The purpose of an organ transplant is to save or prolong someone’s life and Darren’s life was tragically cut short and we are determined to find out how this could have happened. It was difficult enough for us to come to terms with what happened to him but to also hear that another family had also been affected was heart-breaking.

We just hope that things are improved further after this inquest as its been incredibly difficult listening to all the evidence. I would hate for anyone else to have to go through this experience.

– Ian Hughes, Darren's father

Kidney inquest lawyer: 'This isn't the end' for families

The lawyer representing the families of two transplant patients who died after being given kidneys infected with parasitic worms says today's narrative verdict "isn't the end of matters".

Coroner Christopher Woolley today ruled that doctors were not to blame for the deaths of Robert Stuart, 67, from Cardiff, and Darren Hughes, 42, from Bridgend.

Following the conclusion of the inquest, solicitor Julie Lewis told journalists that she had been instructed by the families to explore potential civil negligence claims.

Ms Lewis added: "The families particularly are disappointed at the fact that he found in the doctor's favour in relation to the consent issue, bearing in mind that we thought we'd given very clear evidence of what happened on the day... understandably ,the families feel like they weren't believed when they were giving their very truthful accounts of what happened on the day."

But she expressed gratitude to the coroner for a "thorough" inquiry and said both families were keen that people should not be put off transplantation, with theirs being an "incredibly rare" experience.

She also called for patients to be more involved in decision-making about their medical treatment.

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'Unintended consequences of medical treatment' led to death

Darren Hughes.

The Coroner has ruled that Darren Hughes died as a result of his necessary medical treatment.

Darren Hughes died from Meningoencephalitis on the 19th December 2013, after undergoing a kidney transplant on the 30th November 2013. The source of the infection was the transplanted kidney and the agent of infection was the Halicephalobus nematode present in this kidney.

The kidney had been rejected by several transplant centres before it was accepted for Mr Hughes, either because of its poor function or because of the donor's cause of death. It was not rejected because of the Halicephalobus nematode, or accepted in spite of it, as this organism is almost unknown to medical science and there was no test for it in the circumstances of this transplant. Darren Hughes died from the unintended consequences of necessary medical intervention.

– Coroner

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Robert Stuart died from consequences of medical treatment

Robert Stuart with his wife.

The Coroner has ruled that Robert Stuart died as a result of his necessary medical treatment.

Robert James Stuart died from Meningoencephalitis on the 17th December 2013, after undergoing a kidney transplant on the 30th November 2013. The source of the infection was the transplanted kidney and the agent of infection was the Halicephalobus nematode present in this kidney.

The kidney had been rejected by several transplant centres before it was accepted for Mr Stuart, either because of its poor function or because of the donor's cause of death. It was not rejected because of the Halicephalobus nematode, or accepted in spite of it, as this organism is almost unknown to medical science and there was no test for it in the circumstances of this transplant. Robert James Stuart died from the unintended consequences of necessary medical intervention.

– Coroner
  1. Hannah Thomas

Coroner rules decision to use infected kidneys was 'correct'

Darren Hughes (left), Robert Stuart (right) died after receiving kidney transplants at the University Hospital of South Wales Credit: Family photo

The coroner has reached a narrative verdict in the inquest of two men who died after receiving kidney transplants.

He says that both Robert Stuart and Darren Hughes died from the unintended consequences of necessary medical intervention.

He also said there were no gross failures of neglect in the decision to go ahead with the transplant.

Robert Stuart, 67, from Cardiff and Darren Hughes, 42, of Bridgend both died from a parasite known as halicephalobus, which lives in soil and is often found in horses.

  1. Hannah Thomas

Coroner due to deliver verdict in kidney death inquest

Darren Hughes (left), Robert Stuart (right) died after receiving kidney transplants at the University Hospital of South Wales Credit: Family photo

The coroner taking the inquest into the deaths of two men who died after infected kidney transplants at the University of Wales last December has retired to consider his verdict.

He told the families of the two men in court this morning that he will be reaching a narrative conclusion, but he wants to reflect on all the evidence before beginning his summing up.

Darren Hughes, who was 47 and from Bridgend,and Robert Stuart who was 67 and from Cardiff, both died from meningitis which had come from their kidney donor. The illness was caused by a rare parasitic worm, more commonly found in horses.

The two Welshmen were the first human-to-human recorded cases of the parasite in medical history.

Kidney transplant death inquest to conclude

The inquest into the deaths of two men who both died after having a kidney transplant from the same donor whose organs were allegedly infected with a parasitic worm, will finish today.

Darren Hughes and Robert Stuart died after kidneys transplants. Credit: Family Pictures.

Robert Stuart, 67, from Cardiff and Darren Hughes, 42, of Bridgend both died of an infection known as halicephalobus, which lives in soil and is often found in horses.

There have only been five reported cases in the world of people diagnosed with the infection.

The solicitors for the families of the two men say they are desperately seeking answers following the deaths.

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