A family from Bury who lost their son to Juvenile Battens Disease are raising money for the charity which helped give him extra years of life.

Family fundraise for charity that gave them 'extra years' with son

TT 260821 The Rich Family - Nicole and Jessica - Batten Disease

Nicole and Jessica Rich have Batten Disease. For years the family have had to travel for hours for treatment. It will now be available at the RVI Newcastle. 

Joy for the Rich family as Life-prolonging treatment made available in Newcastle

Parents of terminally ill siblings take legal action over NICE's decision not to recommend funding for specialist treatment 

Parents of siblings with Batten Disease take legal action over treatment

A Cheshire couple whose children need expensive drugs to help them with a life limiting condition are calling on the government to help.

Cheshire parents appeal to government to fund drug

The mum of a boy diagnosed with a fatal and extremely rare condition that can cause dementia is urging the NHS to fund a drug.

Mum's plea for NHS to fund drug to help six-year-old son

Terminally ill sisters travel hundreds of miles to two different hospitals in two different countries.

Family travel 600 miles for life-prolonging treatment

A Newcastle family has joined forces with a local dance school to raise money for two little girls battling a rare fatal disease

Dance fundraiser for two young girls with rare disease

A Newcastle family say they're 'completely and utterly devastated' after their youngest daughter was also diagnosed with Batten's Disease


Battens Disease

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