Battle for NHS drug to save eight-year-old who lost sister to same disease
A mother from Throckley says she worries every day about the medicine that stops her daughter's Batten Disease taking over her life being pulled.
A mother from Throckley says she worries every day about the medicine that stops her daughter's Batten Disease taking over her life being pulled.
A mother from Doncaster who cares for her severely disabled son says she's terrified about losing their home when the cost of energy goes up next month.
The parents of Nicole Rich, who had Batten disease, have announced their beloved daughter has died from 'severe complications resulting from a chest infection'.