A mother from Devon is calling for a potentially life changing muscular dystrophy drug to be made available on the NHS. Today she joined a group of campaigners at Downing Street who say the drug is taking too long arrive.
Families desperate for the NHS to approve a drug that could change their children's lives have just found out they have to keep waiting.
The decision on whether to fund Translarna, which could be life-changing for children with muscular dystrophy, was expected to be this afternoon.
The mother of a boy from Devon who has the devastating muscle-wasting condition Duchenne Muscular Dystrophy has been fighting for the NHS to approve the drug, which is widely available in Europe.
Ruth Le Gal's son Leo is being treated with Translarna in America, and his family say they have seen huge improvements in the last few months - but they are desperate for the drug to be approved here as he is only being treated as part of a trial.
A decision won't now be made until NICE concludes its appraisal process.
The creative industries across Bristol and Bath have received £46 million to create 'new experiences and boost productivity.'
A service in Plymouth run by the NSPCC, which helps prevents online child sexual abuse, is expanding.
Bristol Water is urging people to stay safe and not swim in the water at spots like Chew Valley or Cheddar Lake this weekend.