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Devon mother calls for drug to help with Muscular Dystrophy

A mother from Devon is calling for a potentially life changing muscular dystrophy drug to be made available on the NHS. Today she joined a group of campaigners at Downing Street who say the drug is taking too long arrive.

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Mother calls on NHS to help children with muscular dystrophy

Ruth Le Gal's son has muscular dystrophy. Credit: ITV News

A mother from Devon is urging the NHS to approve a drug that could help treat children with muscular dystrophy.

Ruth Le Gal's son Leo is being treated with Translana in America - and while it is widely approved elsewhere in Europe, the NHS are yet to make it available here.

She says it is vital children get it as soon as possible.

Although the medication isn't designed or intended to restore function that has been lost - so we haven't seen him miraculously leap up and run around - it has stabilised his condition, which is a fantastic thing for us because it means he is no longer getting any worse.

– Ruth Le Gal

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