People with the condition ME in Wales say they suffer from an absence of specialist care, and have found a lack of sympathy and knowledge in the NHS and social services. The Welsh Government has admitted progress has not been universal around Wales.
"We have a growing recognition and a growing investment in conditions such as Alzheimer's, but conditions such as ME are not so readily recognised or invested in" says Ana Palazon, Chair of the Wales Neurological Alliance.
"We want parity and equity of recognition and services for all conditions."
Rain clipping the far north through the evening but elsewhere staying dry with some sunny spells.
Public Health Wales figures show 25 more cases of the virus have also been confirmed.
Photos taken on Saturday morning show Roald Dahl Plass strewn with empty beer bottles and discarded canisters of laughing gas.