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Cystic fibrosis drug decision

Health Minister Mark Drakeford says the cystic fibrosis drug ivacaftor (Kalydeco)) will be made available in Wales. It follows protests after a strategy group recommended the drug should not be made available due to cost.

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  1. Megan Boot

Mother of children with cystic fibrosis "over the moon" at drug decision

Tara Jones first spoke to ITV News on Wednesday

Tara Jones from Bridgend has told ITV News of her joy at the Health Minister's decision to introduce the cystic fibrosis drug kalydeco on the NHS.

Three of her four children have had a cystic fibrosis diagnosis.

Her daughter Lucie died from the inherited disease three and a half years ago. Her daughter Aimee is now receiving the drug on compassionate grounds, but before today's decision her son Stephen wasn't able to get it.

"I'm amazingly well - I'm over the moon" says Tara.

"Apart from giving birth to my kids, this is one of the best days of my life. I've been crying. Stephen has just been jumping up and down."

Health Minister Mark Drakeford is now working on the detail of how the drug will be introduced to the 13 people in Wales who are eligible for the treatment.

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