Campaigners have handed over a petition to the Welsh Assembly calling for a cystic fibrosis drug to be made available in Wales.
A protest was held in June last year over the lack of availability of the drug, Orkambi.
The petition was started by Rhian Barrance, from Cardiff, whose best friend has a son with cystic fibrosis.
Cystic fibrosis is a life-shortening, inherited disorder leading to severely reduced quality of life and life expectancy.
The latest figures show that half of all people who died with cystic fibrosis last year were under the age of 31.Orkambi is said to target the underlying cause of cystic fibrosis.
The treatment was licensed in the UK over two years ago, but is still not available on the NHS.
