Chief scientific adviser loses high court bid to block disciplinary probe

Northern Ireland's chief scientific adviser has lost a High Court bid to block a disciplinary investigation into allegations he failed to tell the family of a nine-year-old girl who died about "failings" in her treatment.

Claire Roberts died from hyponatraemia, which is linked to a shortage of sodium in the blood, at the Royal Hospital for Sick Children in Belfast on October 23 1996, shortly after she was admitted to hospital following several episodes of vomiting.

A General Medical Council spokeswoman said in a statement: "We are pleased the court has decided that our decision to investigate in this case was lawful and will now continue.

"This is a difficult time for all concerned and our thoughts remain with those families who lost children to hyponatraemia in Northern Ireland.

"As in any case, we will look at all the evidence before making a decision."

Professor Ian Young was asked to review the case in 2004 and provide an assessment on whether hyponatraemia contributed to Claire's death.

A public inquiry investigating the deaths of Claire and four other children from the condition found Prof Young did not inform Claire's parents - Alan and Jennifer Roberts - about failings in her care and gave "misleading" evidence to the original inquest into her death.

Nine-year-old Claire Roberts died in hospital in 1996 from hyponatraemia. Credit: Family photo

In a January 2018 report, inquiry chairman Mr Justice O'Hara also said Prof Young had "shifted from his initial independent role ... to one of protecting the hospital and its doctors".

A new inquest, which was ordered following the inquiry, concluded in June 2019 that Claire's death "was caused by the treatment that she received in hospital".

Prof Young referred himself to the GMC shortly after the inquiry's report was published and the regulator initially decided not to waive its usual five-year time limit for fitness to practise proceedings.

But the GMC reversed its decision in January 2020, finding it was "in the public interest" for the allegations against Prof Young to proceed to an investigation.

At a High Court hearing in January, Prof Young's barrister Robert Kellar QC said the original decision that it was not in the public interest to waive the statutory time limit on investigations was "lawful and rational" and the reversal of that decision was "inconsistent and unreasonable".

Mr Kellar also argued the second decision by the GMC "took into account irrelevant considerations and unfairly mischaracterised Prof Young's conduct".

But, in a ruling on Tuesday, Mr Justice Holgate dismissed Prof Young's challenge.

The judge said that the GMC's original decision was "wholly unsustainable" and had failed "to appreciate key elements of the inquiry's findings going both to the seriousness of the allegations and the public interest issues involved".

Mr Justice Holgate added that the GMC was right to conclude that there were "material flaws" in the original decision.

Commenting on the High Court judgment, Professor Ian Young’s legal team, said: “In February 2018, Professor Young self-referred to the GMC following the publication of the report of the Inquiry into Hyponatraemia Related Deaths in January 2018.

"Following a consideration of the issues, the GMC decided to close the matter with no adverse findings against Professor Young. An internal review led to a reversal of that decision, and subsequently to Professor Young, on advice from his legal team, bringing this challenge.

"In reaching his decision the Judge explicitly stated that it is not his role to express any conclusion about the merits of findings which have been made by others or the allegations against Professor Young, and that the judgment should not be treated as if it does.

“Professor Young continues to acknowledge the ongoing suffering of Mr and Mrs Roberts and their family in relation to Claire’s death in 1996 and subsequent events.

"He has apologised previously if any of his actions have inadvertently contributed to their distress, and would like to do so again.

“Professor Young had no involvement in Claire’s care or that of the other children whose deaths were investigated by the Hyponatraemia Inquiry. He reviewed Claire’s records at the request of the Belfast Trust in 2004 and concluded that hyponatraemia may have played a role in her death. 

"He recommended that her death should be referred to the Coroner and met with Claire’s parents at that time to explain this to them.

“Professor Young attended the Inquest into Claire’s death as a Trust witness in 2006 where he stated that hyponatraemia contributed to her death, along with other factors.  The Coroner asked two independent experts from outside Northern Ireland to review Claire’s case and to attend the inquest as witnesses; at this time Professor Young informed the Coroner both in writing and verbally that he agreed with the views expressed by the Coroner’s experts regarding the care provided and the cause of Claire’s death.

"Furthermore, he agreed with the Coroner at the inquest that Claire’s case should be discussed with the Hyponatraemia Inquiry.

“Throughout these events, Professor Young believes that he has acted with integrity, to the best of his ability, to give clear and honest opinions which reflected his knowledge and understanding of the evidence at the time. In particular, he denies completely any suggestion that he sought to mislead the coroner or Claire’s parents in any way. Indeed, he believes that the record is clear that on every possible occasion he has sought and supported further independent external scrutiny of Claire’s care.”