How locked-in syndrome changed family life forever

Eve cannot communicate but is aware of the world around her Credit: ITV Tyne Tees

Eve Anderson was a bubbly and sporty eight year old. On the 14th February 2011, her life changed forever when she collapsed with a brain haemorrhage.

She received a life saving operation but a few months later she was diagnosed with a brain tumour which required radiotherapy.

After this traumatic time, her family had more to cope with. Eve had developed locked-in syndrome, meaning she was unable to move or talk, yet completely aware of the world around her.

Since Eve's diagnosis, her mother Lee and stepfather Peter have adapted their lives. Eve uses a wheelchair, and the family have moved house in order to accommodate equipment such as a hoist and a lift.

Eve's brother and sister help their parents with her daily routine. Peter and Lee say they are a 'wonderful strength'.

Eve with her sister and brother Credit: Miller family

Life for 9 year old Eve is extremely limited and her family are now raising money to buy equipment to help her enjoy herself as much as possible. They are organising a series of charity events including a sponsored walk.

Before Eve's diagnosis, her family knew little about locked-in syndrome. They hope her story will raise awareness of the condition which changes lives forever.