Young boy will be able to open his Christmas presents himself for the first time
Sam McKie has Spinal Muscular Atrophy and his family helped to campaign to make the drug Spinraza available on the NHS.
Sam McKie has Spinal Muscular Atrophy and his family helped to campaign to make the drug Spinraza available on the NHS.
Sam McKie has the genetic condition Spinal Muscular Atrophy, or otherwise known as SMA. He's never been able to crawl or walk.
Spinraza had been labelled too expensive to be provided on the NHS in England