Oxfordshire toddler told she'd never walk is now taking steps to raise money for charity

Watch: Frankie-Rae gets in her steps - defying predictions from doctors that she would never walk


A toddler who was told she'd never to be able to walk, is now raising money for charity by completing a walking challenge.

Frankie-Rae, 2, has microdeletion syndrome 17p13.1, a very rare condition which means she is missing part of a chromosome. Only 21 other people are known to have the condition.

It results in development and speech delay, and hyper-mobility issues. She also has a liver issue, and suffers with reoccurring urinary tract infections.

But despite all of this, her family say the youngster from Kidlington, Oxfordshire is 'extremely happy and very determined'.

Frankie-Rae with her big sister Georgie-Ellyn have been working hard to raise money for The Carter Trust.

Frankie-Rae is now raising money for The Carter Trust, a charity that has enabled her family to buy a specialist wheelchair and pushchair.

Her mum Mary-Ella Tuppenney-Hockney says the equipment has changed everything and Frankie-Rae's quality of family time.

Mary-Ella said: "It means we can go out as a family and she absolutely loves that.

"Just that one product has transformed our lives and made such a difference to us all. So we're so grateful to the Carter Trust for that - that's why we wanted to give something back to them."

This specialised pushchair means the family can enjoy more days out together.

Every day, Frankie-Rae has been taking a couple of steps either unaided or with a walking frame as part of her charity challenge across four weeks.

Her 8-year-old sister Georgie-Ellyn is also doing her bit to say thank you, raising around £160 by making and selling bracelets.

Her family say the response so far has been amazing, with more than £1,000 raised for the Carter Trust.

Frankie-Rae's mum added: "We're so, so proud of Frankie-Rae every day. We're so proud and we're so proud of our other little girl as well because she helps her all the time, trying to walk and encourages her. She's got great support around her, helping to achieve her goals."