Sufferers of a rare genetic disease are meeting for the first time in the region. They are hoping to shed new light on the condition which affects fewer than 100 people in the world. The day's been inspired by four year old Holly Kitchen.
Sufferers of a rare genetic disease are meeting for the first time in the region.
They are hoping to shed new light on the condition T9M which affects fewer than 100 people in the world.
The day's been inspired by four year old Holly Kitchen, from Bootle.
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