Wavertree man, 20, given weeks to live after suffering lower back pain

Dylan Lamb's treatment could cost over £500,000. Credit: Liverpool Echo

A 20-year-old man has been given just weeks to live after he went to A&E suffering lower back pain - with his treatment potentially costing over £500,000,

Dylan Lamb, 20, who studies international business at the University of Liverpool, noticed he was suffering from the pain in April 2022, but first shook it off thinking he had just pulled a muscle.

He returned to his family home in Staffordshire and managed to get pain killers from his GP.

Dylan, who lives in Wavertree, and his mum, Kim, went to A&E on 28 April, 2022, after the pain became "unbearable".

A blood test confirmed the student's white blood cell count was "through the roof" and he was admitted to hospital for further tests.

Dylan Lamb with his girlfriend Phoebe Cole. Credit: Liverpool Echo

Dylan's girlfriend of three years, Phoebe Cole, 20, said he was quickly diagnosed with Precursor T-cell Acute Lymphoblastic Leukaemia and was having chemotherapy three days later.

Phoebe said: "He had this lower back pain that could have been multiple different things, he thought he had pulled a muscle.

"We were coming home for Easter and it got progressively worse, he lost his appetite and was being sick.

"His mum took him to A&E in unbearable pain and a blood test showed his white blood cells were through the roof.

"It all happened so fast, he was diagnosed with Leukaemia and then three days later he was having chemotherapy."

Dylan was transferred to Nottingham City Hospital where they have a specialist Haematology Team and a Teenage Cancer Trust Unit.

Treatment included chemotherapy and a stem cell transplant.

He also had to endure bone marrow biopsies, high dosage steroids and intrathecal injections.

Dylan made the decision to have his sperm frozen in case he became infertile following chemotherapy and shaved his hair off. Credit: Liverpool Echo

His Auntie, Kelly Payne, described how the affect of Dynan's treatment was "devastating".

In the description of a GoFundMe page for Dylan, she said: "Dylan is a kind, funny, genuine, nice, caring young man, loving life.

"Heart-broken does not even begin to explain how the whole family felt.

"The effect this treatment had on Dylan’s body and mental health was devastating.

"His face swollen and puffy due to high doses of steroids, his stomach extremely swollen due to his internal organs swelling making it impossible for him to sleep and effects on his mental health which left him not wanting to see his loved ones."

Following a change in chemotherapy Dylan was told he was in remission on 5 July, 2022. A donor was found and Dylan underwent a stem cell transplant on 22 and 23 September before being discharged on 6 October.

It wasn't long until Dylan started feeling "normal again" and he returned to university. But in June 2023 Dylan started feeling pain in his lower back once again.

Phoebe said: "Literally two weeks ago the lower back pain came back and he said he knows this pain and it felt familiar. He went back to his doctors at Nottingham City Hospital and asked them to check him over.

"A blood test showed nothing and he went home. He admitted himself into hospital as he wanted an MRI, it showed nothing, and he had another blood test on 29 June which showed his blood cells were inclined.

"He was told the Leukaemia has come back and he has weeks or months left to live. It was a massive shock to the system, especially as we had been told he was fine, not fine and fine again.

"His family are amazing and are supporting him. He is keeping his sense of humour and is being really up beat, but I know deep down he must be scared."

Dylan Lamb's only option is to travel to America for treatment. Credit: Liverpool Echo

Dylan's only option for life-saving treatment is a clinical trial in America which would involve CAR T Therapy and Base Editing where the DNA of T cells are taken from the donor and re-engineered so they attack only the Leukaemia and not each other.

This would then be followed by a further stem cell transplant.

The treatment could cost more than £500,000 and Dylan's family have created a GoFundMe page to try and raise enough money to fly over to America and get the treatment. The page has already raised almost £62,000.

Phoebe said: "It will be life changing for him and for the rest of us [to get treatment in America].

"The support so far has been insane, the most amazing thing to see is the amount of people who don't know him who are donating.

"It means so much to us all."


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