NHS England defers decision on Morquio drug by '12-16 weeks'
NHS England has today deferred a decision on Vimizim - the drug required by six-year-old Morquio syndrome patient Sam Brown from Otley - by a further 12-16 weeks.
Sam Brown's mother outraged after Tory donations appeal
The mother of Sam Brown is outraged after being asked to give money to the Conservative Party - by David Cameron - while she's fighting to get a life changing drug for her son.
Sam, 6, has the rare condition Morquio Syndrome which means his skeleton does not grow properly, but his internal organs do.
His mum Katy is still waiting to find out if NHS England will fund the drug he needs and has appealed to Mr Cameron.
Imagine her surprise when she got an appeal from the Tory leader in a campaign email asking her for money to help future generations.
Mr Cameron says he'll investigate as Sarah Clark reports:
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