NHS England defers decision on Morquio drug by '12-16 weeks'
NHS England has today deferred a decision on Vimizim - the drug required by six-year-old Morquio syndrome patient Sam Brown from Otley - by a further 12-16 weeks.
Leeds MP blasts NHS England as 'cowards' in fight for drugs
An MP from Leeds says he is "disgusted" at the way NHS England have acted towards families, charities and ministers after senior officials failed to attend a meeting.
Greg Mulholland MP met life sciences minister George Freeman MP yesterday, and took along representatives from several charities and drugs companies.
He said that despite receiving a face-to-face assurance from NHS England official Anthony Prudhoe that he would be present at the meeting, NHS England failed to show up.
Mr Mulholland said he is "disgusted at NHS England cowards for failing to be answerable for their own mess."
He added that during the meeting yesterday, it emerged that NHS England had clearly been misleading the life sciences minister.
The MP has also tabled a parliamentary motion calling on Jeremy Hunt to use his power and intervene.
Mr Mulholland is campaigning for NHS England to announce interim funding for the just 180 people across the UK who are affected by the ultra-rare diseases such as Morquio disease - which affects Mulholland's six year-old constituent Sam Brown from Otley.
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