Parents share heartbreaking news to raise awareness of daughter's rare condition

A three-year-old girl from Leeds has been diagnosed with a rare condition that affects only one in one million children.

Tests confirmed Zoe Lightfoot has Infantile Neuro Axonal Dystrophy, a rare genetic, degenerative, neurological condition with a life expectancy of just 5 to 10 years.

Her parents are now trying to raise awareness of her condition and have set up a fundraising page for the little girl, who is due to go to America to take part in a drugs trial. They are aiming to raise £20,000. Sarah Clarke has more.

Infantile Neuroaxonal Dystrophy (INAD) is a rare inherited disorder which affects the nervous system. It is caused by an abnormal build-up of substances in the nerves, brain and body. The classic form is usually diagnosed in infancy or early childhood and leads to a progressive loss of vision and developmental milestones.

To find out more about the condition visit :NHS Infantile Neuroaxonal Dystrophy site