Two-year-old girl one of youngest on UK transplant list
Video report by ITV News Correspondent Martha Fairlie
Meet two-year-old Monica Nar - one of the youngest children in Britain waiting for an organ transplant.
Monica was born with kidney failure and has to undergo four hours of dialysis three times a week to filter the waste products from her blood.
Her father Sanji Nar was told he wasn't a suitable living donor - so the family must wait for a donor kidney.
Monica has been on the transplant list for eight months.
In the UK last year, 15 children died before a suitable donor could be found.
This is despite 22.6 million people having signed up to the NHS Organ Donor register.
Mr Nar told ITV News a transplant would give Monica - "a life that she's never had."
"It would be like having a new born baby again and then having her live her life from then and have a life like a normal child," he said.
While dialysis works in the short-term, Dr Stephen Marks from Great Ormond Street explained that the long lasting effects are still there.
"There is an increased chance of children dying earlier as adults if they don't get a kidney as quickly as possible," he said.
Last year 26 kidney operations were carried out at Great Ormond St Hospital, but organ transplants are still relatively rare.
There are currently 69 children in the UK waiting for a kidney transplant.
In Wales, all adults are potential organ donors unless they opt out, but in the rest of the UK, people have to register and family's still need to give consent.
Monica's desperate wait continues, but more donors mean a greater chance of a potential match and a new life for children like Monica.