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T9M families meet

Sufferers of a rare genetic disease are meeting for the first time in the region. They are hoping to shed new light on the condition which affects fewer than 100 people in the world. The day's been inspired by four year old Holly Kitchen.

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Families unite with Holly

Sufferers of a rare genetic disease are meeting for the first time in the region.

They're hoping to raise awareness of a condition which it's thought only affects around 100 people in the world.

The day's been inspired by four year old Holly Kitchen, Victoria Grimes has been to meet her.

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