NHS England defers decision on Morquio drug by '12-16 weeks'
NHS England has today deferred a decision on Vimizim - the drug required by six-year-old Morquio syndrome patient Sam Brown from Otley - by a further 12-16 weeks.
Six-year-old Sam's free life changing medication supply ends
It is the moment that one local family have been dreading for years.
We have been covering for some time the case of six year old Sam Brown.
Sam whose family live in Otley, suffers from a debilitating genetic disease. For the last three years he has been using a life changing drug - supplied for free by the firm which makes it.
But today, the free supply came to an end - and the family, who believe it's Sam's only chance to live a long and healthy life, simply don't know if the NHS will pay for him to have the drug in future.
Adam Fowler reports:
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